A true God-send

I am SO incredibly thankful for Lucca's new geneticist, Dr. Charles Williams @ UF Gainesville. He certainly is a true God-send. I am so glad we decided to get a 2nd opinion from Lucca's 1st geneticist. If it wasn't for Dr. Williams, we may never have known about how complex Lucca's chromosomes really are, and that he actually has 2 chromosomal issues. P-MS & Partial Trisomy 10. He was so caring and sympathetic and informative all at the same time, and seemed truly interested in Lucca's condition and development. We saw him in April and already I have spoken with him and his genetic counselor multiple times over the phone and through e-mail, where as with our 1st geneticist I tried MULTIPLE times to even get a hold of him from Oct '10-Feb'11, with no success.

We are in the process of trying to get Lucca 3 different type of equipment right now, and of course for each one we need a script.. I e-mailed Dr. Williams yesterday asking if he would be able to write them for Lucca and this morning he had already e-mailed me back saying he would write them and fax them to Early Steps right away. How awesome! He is definitely a blessing from God , and I am so thankful we found him!

What a Blessing

God sends us blessings in little ways that sometimes we tend to overlook.... For some reason I have really been stressing out a little about Christmas pictures this year. Partly because Lucca is so unpredictable, and his reflux, and the waiting way past your appt time before they actually take you back, etc. Especially after we went last week and Lucca ended up not feeling well and not cooperating and then us having to reschedule just kinda made it a little more stressful lol.. Plus the place we are going is very good but they aren't the cheapest and they always weasel you into buying more than you intended so it ends up costing more than you wanted to spend. With all the doctor bills we have right now, that's not a good thing lol because I'm easily weaseled! hehe

Well Today, Randy's cousin Tara (from T.R. Photography...you can look her up on facebook) sent me a random e-mail asking where we lived. I told her where and she sent one back saying that she wanted to do our family photos for us.....for FREE!! Excuse me?! Did you say free?! OMG What a TREMENDOUS blessing for us right now! I wanted to cry I was so happy and excited and relieved that she offered to do this for us! This is just an awesome reminder to me that God works in mysterious ways and He is blessing us every day in little ways... God is so good! and thank you so so very much Tara! You don't know what a great thing you are doing for us, we really appreciate it!

Flood of Emotions

I feel like I have been super emotional this past week.. Flooded with emotions that I cannot control..It has been really hard to focus at work and not let my mind wander. But oddly enough...I have also had a peace about everything. I know that my God is a loving God. I also know that God does not make mistakes, and my little Lucca is going to be very special..he already is. When I go back and think when he was a baby...he has not had a normal childhood since birth.. Jaundice & dehydration his very first couple days of being born..Allergic to milk AND soy...REFLUX that lasted till he was around 14 months...In and out of the hospital for tests, and of course all his delays & going through therapies...But through everything, that little boy has been the happiest little boy I've ever met. He lights up my life, and he is such a blessing to me. I believe everything that he has experienced has made him such a little fighter and has made him so strong. I know that God brought him into this world to do good things and to fulfill something for Him. I pray everyday that God uses him for His work, and will help me lead him in that direction. I love that little boy more than anything, and I know God has great things planned for him =) I am so thankful and blessed to be "Lucca's Mommy" Thank you Lord for sending me that little blessing!

This smile sums it up =)