Saturday, April 2, 2011

$22 for 22Q in 22days

To our friends and family, As you know our son, Lucca, has Phelan-McDermid Syndrome. The condition is primarily caused by a deletion of the 22nd chromosome. It is a very rare disorder and less than 600 people in the world have been diagnosed with this condition. It has been recently recognized as a genetic cause of autism and there is a "buzz" among researchers right now about kids like Lucca. The Phelan-McDermid Syndrome Foundation ("PMSF") is a support group for those impacted by the syndrome and we are members. PMSF is raising money that will go towards many areas of need including research, conference costs, grant writing, administration and support for our families. We're anxious to do what we can to help Lucca and others like him! We have pledged to help PMSF and thinking you might like to help, too. We're asking 22 friends and family to contribute $22 by the 22nd of this month to help those impacted at their 22nd chromosome. You can get us a check (made out to PMSF), send it direct to the foundation at P.O. Box 1016 Venice, FL 34284 or log on at and make a contribution viz PayPal. Be sure to include "in honor of Lucca McLendon" so we can thank you for your generosity. One more thing.......can you forward this message to 22 special people you think might also be willing to contribute, too? The foundation thinks this can be a $100,000 fundraiser if enough of us participate and spread the word. Thank you so much for your love and support of Lucca and for your consideration in making a $22 donation!

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